Anonymous Keloid Encounter, a True Story:

Here is my story about a keloid growth for over 20 years on my left earlobe as a result of piercing;

My mother got my ears pierced when I was about 5. I then developed a keloid behind my left earlobe, it was tiny and not so visible unless if you paid close attention to it. My mother suggested that I should stop wearing earrings to avoid the keloid from growing bigger. I lived with it over the years, because my parents were under the impression that there was not much that could be done about it.

The years went by, I started feeling self-conscious about it, particularly because other kids made fun of my ‘abnormal appearance’. I cried about it because I just didn’t know what to do. Thankfully when I started high school, the teasing had stopped, as high school kids were more sympathetic about my disfigured earlobe, but that did not take away my self-consciousness and the will power to have it removed. So I started doing research on my own, because my parents had given up hope, as it is a disease that runs in the family (my mother has a small one behind her earlobe as well).

After bounty of reading and asking around from people, I learned that I could actually have it surgically removed. I went for an operation when I was 18 years old. The surgeon successfully removed it, leaving very little trace where the keloid had formed on my earlobe, but he negligently did not check or inform me that there was no follow up medication/treatment for me. The radiation therapy machines had been broken for years all over the country where I had it done, so unfortunately the keloid recurred, plus it grew bigger this time. I never had it removed again, because I did not have the finances to go to South Africa, which was the closet country to me with radiation therapy.

I now live, with a keloid, which is ten times bigger, then it could’ve been if had received the right treatment. I cover my ears all the time with suiting hairstyles and I can’t wear earrings and I ‘m self-conscious all the time. Whenever my ear is unintentionally exposed (either by the wind blowing my hair away from my ear, or my hairdresser) I feel embarrassed.

I’m sharing these story hoping to encourage keloid patients out there to be grateful, just for being a live, and for at least having all your body parts. It could be worse. And for those who do not suffer from this, the best treatment is prevention in patients with a known predisposition. This includes preventing unnecessary trauma or surgery (including ear piercing, elective mole removal, body tattoos), whenever possible. Any skin problems in predisposed individuals (e.g., acne, infections) should be treated as early as possible to minimize areas of inflammation.

Anonymous

LATEST NEWS

    3rd International Keloid Symposium:

    (July 15, 2018) KRF is proud to announce that the 2nd was successfully held on June 7-8, 2018 in Rome, Italy with attendees from 22 different countries. During this meeting, KRF was invited to host the 3rd International Keloid Symposium in Beijing. Since the Rome meeting, the organizing committee has worked hard to make this a reality. We are now pleased to announce that our next meeting, the 3rd International Keloid Symposium, which will be a three day meeting will be held in Beijing, China on April 19-21 at the Lecture Hall of the Peking Union Medical College Hospital. Click on the image below to be directed to the symposium website.

    2nd International Keloid Symposium:

    (January 18, 2018) KRF is proudly announcing that the 2nd will be held on June 7-8, 2018 in Rome, Italy. Click on the image below to be directed to the symposium website.

    Notice of 501 (C)(3) Status:

    (February 1, 2017) Keloid Research Foundation has been determined by the US Internal Revenue Service (IRS) to be exempt from federal income tax under Internal Revenue Code (IRC) Section 501(C)(3). Donors can deduct contributions they make to KRF under IRC Section 170. Click here to view the 501(C)(3) Exemption Document.

    Journal of Keloid Research:

    (December 3, 2016)KRF is proud to announce establishment of Keloid Research, an open access scientific publication of the Keloid Research Foundation. Until now, keloid manuscripts have been published in a variety of journals. Our goal is to create a centralized publishing platform for all researchers who are passionate about this disorder, so that relevant clinical and laboratory research can be published in one place and under one umbrella. The journal is aiming to provide an international forum for the publication of original work, describing basic science, translational and clinical investigations in keloid disorder.

    Keloid Staging System:

    (August 19, 2016) In his most recent publication, "Neck Keloids: evaluation of risk factors and recommendation for keloid staging system" Dr. Tirgan has designed a staging system that allows for proper categorization and grouping of keloid patients into various stages.

    To assess each keloid patient properly, to better understand the natural history of this disorder, and to be able to compare future keloid study results among various patients groups, we clearly need a staging system that can allow us to describe the severity keloid disorder based on the size, location and/or extent of the keloidal lesions; as well as history of surgery or radiation therapy, and perhaps other factors that are currently unknown to us. Please click HERE to read more.