Another Keloid Encounter, Should Keloid Treatment be Considered Cosmetic?:

I am a female, Black, 63 years old. When I was about 19, I noticed a small white head bump on my chest. I busted it. I was used to "picking bumps (blackheads)" so I didn't think anything of it. However, this time it started growing. At first it was very small and then began to grow to the size of sunflower seed. My stepfather saw it and said I should go to a doctor and get it looked at. So I thought to myself it may be a good idea. I don't want to have cancer or anything. So I went to a surgeon and had it removed (I thought.)

What he showed me after the surgery looked like a small sack filled with clear fluid with tendrils on it. I was like, this looks like some sort of animal or something. Still I didn't think much about it because I was not thinking it would return. A few weeks later, my skin began to bubble up and overlap the stitches. As time went on, everything seemed to irritate it and make it itch. Then I would rub it because it was painful to scratch it. Eventually it grew or shall I say spread to the size of a 50 cent piece. But that is not the end of the story.

About 15 years ago after taking a mammogram I went into the hospital for a biopsy. The doctor went into the outer left side of my breast and the outer right side of my other breast. I told the doctor then that I was prone to keloids and they gave me some topical treatment to prevent the scarring, but it didn't work. Now I have two big rings of keloids around the outer sides of my breasts. Not only that I have about 5 or six on the top part of my back.

I no longer have a navel because of a surgery where they went in through the navel. I just have a keloid there. I used to get carbuncles (clusters of boils) there at one time, but have not been bothered by them for a few years now. But now I get pains shooting through the areas where the keloids are like on my navel and through my breast and sometimes on my chest. It's very painful. It feels like I'm being stabbed by a knife.

This has been really bothering me so I decided to do a little research and am thinking about creating a blog on this dilemma. I am so glad I found this site. There needs to be something more done about this situation. I guess people of color don't really matter to the medical world. I tried to get some other type of medical attention to remove the keloids and was told by the insurance company that the removal would be cosmetic in nature and not considered a health issue. But what about the tendrils? Are they spreading and connecting to one another and bleeding into nerves that are sensitive? You tell me.


    KRF Clinical Practice Guidelines for Treatment of Keloids:

    (January 11, 2019) KRF is proud to announce publication of several Keloid Treatment Guidelines. Authoring and production of these Guidelines has been a time-consuming task, yet one that has been long waited for. These Guidelines reflect the most up to date approach to treatment of keloids. We hope that the Guideline allow for establishment of standards in treating keloid patients across the globe. KRF Practice Guidelines.

    3rd International Keloid Symposium:

    (July 15, 2018) KRF is proud to announce that the 2nd was successfully held on June 7-8, 2018 in Rome, Italy with attendees from 22 different countries. During this meeting, KRF was invited to host the 3rd International Keloid Symposium in Beijing. Since the Rome meeting, the organizing committee has worked hard to make this a reality. We are now pleased to announce that our next meeting, the 3rd International Keloid Symposium, which will be a three day meeting will be held in Beijing, China on April 19-21 at the Lecture Hall of the Peking Union Medical College Hospital. Click on the image below to be directed to the symposium website.

    2nd International Keloid Symposium:

    (January 18, 2018) KRF is proudly announcing that the 2nd will be held on June 7-8, 2018 in Rome, Italy. Click on the image below to be directed to the symposium website.

    Notice of 501 (C)(3) Status:

    (February 1, 2017) Keloid Research Foundation has been determined by the US Internal Revenue Service (IRS) to be exempt from federal income tax under Internal Revenue Code (IRC) Section 501(C)(3). Donors can deduct contributions they make to KRF under IRC Section 170. Click here to view the 501(C)(3) Exemption Document.

    Journal of Keloid Research:

    (December 3, 2016)KRF is proud to announce establishment of Keloid Research, an open access scientific publication of the Keloid Research Foundation. Until now, keloid manuscripts have been published in a variety of journals. Our goal is to create a centralized publishing platform for all researchers who are passionate about this disorder, so that relevant clinical and laboratory research can be published in one place and under one umbrella. The journal is aiming to provide an international forum for the publication of original work, describing basic science, translational and clinical investigations in keloid disorder.

    Keloid Staging System:

    (August 19, 2016) In his most recent publication, "Neck Keloids: evaluation of risk factors and recommendation for keloid staging system" Dr. Tirgan has designed a staging system that allows for proper categorization and grouping of keloid patients into various stages.

    To assess each keloid patient properly, to better understand the natural history of this disorder, and to be able to compare future keloid study results among various patients groups, we clearly need a staging system that can allow us to describe the severity keloid disorder based on the size, location and/or extent of the keloidal lesions; as well as history of surgery or radiation therapy, and perhaps other factors that are currently unknown to us. Please click HERE to read more.